You can’t turn off the internet….

It makes you stop and think.

It really does.

I was reading with interest some of the Seroxat archive posts over on Bob Fiddaman’s site Seroxat Sufferers, particularly this one – an extract of which is below:

“Mr Medawar had originally criticised the Committee on Safety of Medicines for accepting as valid the main conclusions of a study conducted on paroxetine (Seroxat) which had been jointly conducted by someone who was then a member of the committee and an employee of the manufacturer of the drug. Their study was later published in a journal edited by the same committee member, who also had personal interests in the manufacturer of the drug”.

It is unbelievable that the article dates from 1999… I read the whole thing and was left thinking nothing has changed at all, has it?

Charles Medawar is still in the saddle – still trying to get the same complaints heard; the MHRA is still about as much good as a chocolate fireguard – and it’s linked far too closely to Big Pharma; Glaxo is still trying to hide clinical trial data that shows Seroxat to be dangerous and useless, while denying there’s anything wrong in the way it markets its drugs; government and most politicians do nothing to help sufferers; I’ll even bet in his private moments Alastair Benbow still thinks to himself “We are trying to help people. The evidence, however, is clear, these medicines [Seroxat] are not linked with suicide, these medicines are not linked with an increased rate of self harm”.

But just hold on there – some things have changed – on a personal level I’m no longer taking Seroxat – there is life after the drug, at least for me. Even though my many years on Seroxat and withdrawal from it were the stuff of nightmares, I’m still here. I’m lucky.

And there’s the internet, providing forums for help and better information than you’re likely to get from your average Doctor; empowering people, connecting them and sharing information; there’s YouTube, and MySpace, there’s archive.org – keeping Paxil Protest alive and making sure that Glaxo don’t get their own way.

There have been the four Panorama programmes (and here)

Then there’s the High Court action against Glaxo in London which has just started.

Without the internet there would have been no appearances on national television, telling the truth to the daytime TV audience – no sunny Sunday afternoons outside Glaxo’s HQ in London being interviewed by American documentary makers – and none of this Blog and all the other Blogs and websites that I hope you make good use of.

It’s not 1999 anymore, things have changed.

I hope that I’ll be able to look back in five years from today and say that again.

We live in a changing world – and I’m not sure that Glaxo have quite realised it has now become impossible for them to keep a lid on things. They can’t shut us all up.

It’s too late – you can’t turn off the internet.

6 Responses to “You can’t turn off the internet….”

  1. squirrel Says:

    The Internet has been a godsend for me,this blog and all the website and forums have allowed me to stop this drug also and made me realise the problems it caused me whilst taking it.Unfortunatley my withdrawl from it has been horrendous but again the internet has allowed me to seek help and support from others in the same position.The days of keeping people in the dark are well and truly over and my dearest wish is that this Seroxat Scandal is fully exposed and that Glaxo is made to answer why they have brought so much suffering to so many people

  2. truthman30 Says:

    What is happening to the MHRA’s supposed “investigation” into GSK’s misconduct with regard to Seroxat? and why is it still on-going after 3 years?..It is a complete and utter disgrace …
    It seems to me that it has been up to the public to find out the dirty truth about Seroxat because the MHRA themselves are incompetent… Or maybe they just have too much to hide…

    Why have the members of the MHRA who have been former employees of GSK not been investigated for their involvement in this disgraceful debacle?… Can we, as concerned members of the public get access to information on this shambles of an investigation?… I think we would do a better job ourselves…
    Actually, we are doing a better job ourselves already…

  3. ROBERT FIDDAMAN Says:

    It’s competition GSK don’t want. Type ‘Seroxat’ into a search engine 6 or 7 years ago and the chances are you’d be taken to either GSK’s homepage or some online pharmacy. Type it in today and it’s a whole different story.

    Keep posting, keep mentioning the name ‘Seroxat’ and let the tags flood ALL the major search engines.

    I’ve got some more archives coming soon as well.

    It’s sickening to learn that the MHRA have had the chance time and time again to intervene – but time and time again they have failed us all. They are corrupt, no mincing words here – C – O -R -R – U – P – T.

    They won’t ever try and sue sites like ours because they know it will only highlight our cause and publicity is the last thing on their minds.

    GSK – MHRA – C – O -R -R – U – P – T.

    Bob

  4. truthman30 Says:

    It would be naive to believe that former employess of GSK working for the MHRA have not had an “influence” in the regulation of Seroxat..

    In the Expert working group sham it was reported back in March 2003 : (http://www.healyprozac.com/MCA/Guardian%202.htm)

    “When the group met for the first time to review the SSRIs in November, before Ms Blears announced its existence, the two Glaxo shareholders had to leave the room when Seroxat was discussed, but they were able to be present during general discussions of the SSRIs.

    The minutes show that an expert witness with many drug company links did not make a full disclosure, although his recollection is that he did.”

    That’s 4 years ago !!!
    It’s an absolute and total disgrace…
    How many Seroxat Suicides could have been prevented in that 4 years ?…
    Seroxat has harmed, maimed and killed many tens of thousands of people…This drug needs to be Banned NOW…

  5. Matthew Holford Says:

    “What is happening to the MHRA’s supposed “investigation” into GSK’s misconduct with regard to Seroxat?”

    I don’t remember what it said, exactly. Something along the lines of “we can’t comment on ongoing investigations.” Just so’s you know, I think I’ve worked out what they’re investigating them, under. It’s some piece of tinpot secondary legislation, which requires disclosure of trials’ results. I’ll have a look for it, and let you know what it’s called. But, from memory, there was no mention of sanctions for failing to comply, and whathaveyou.

    I can see that it would take four years to carry out an investigation of this kind. After all, it would take at least two years to walk to the shelf, take down the file, look for copies of trials results, which one knew had been carried out, and establish whether one had a copy. Then two years to walk back to one’s desk. Goodness knows how long it would take one to pick up the phone and inform one’s superiors.

    Matt

  6. truthman30 Says:

    Sorry but as far as i’m concerned ( and I’m sure i speak for thousands of others here, yes glaxo, thousands of others…)
    G.S.K. and the M.H.R.A. .. are taking the absolute P.I.S.S.


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